Man with Celine Dion's rare disease warns her comeback could be dangerous

A erstwhile marathon runner who was diagnosed pinch nan aforesaid information arsenic Celine Dion worries that crowds could beryllium a "trigger" during nan singer’s precocious announced comeback.

Jon Kelf, 56, was a five-time marathon runner earlier he was diagnosed pinch stiff personification syndrome (SPS) successful 2019, SWNS reported. Dion revealed her ain test successful precocious 2022.

SPS causes progressive muscle stiffness and terrible musculus spasms that tin lead to chronic pain, falls and nonaccomplishment of mobility complete time, according to UT Southwestern Medical Center.

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"In immoderate cases, spasms are truthful terrible that they tin origin falls, surgery bones and dislocated joints," nan halfway notes connected its website.

While this uncommon information is not fatal, its symptoms tin dramatically impact a person’s value of life.

LAS VEGAS, NV - MAY 21: Singer Celine Dion performs onstage during nan 2017 Billboard Music Awards astatine T-Mobile Arena connected May 21, 2017 successful Las Vegas, Nevada. (Photo by Ethan Miller/Getty Images) (Ethan Miller/Getty Images)

The illness is often triggered by emotional stress aliases noise, elements Kelf calls "particularly debilitating." He shared pinch SWNS that he ne'er expected Dion to execute again.

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 "I was a spot surprised. Especially erstwhile she talked astir nan dancing. I couldn’t creation earlier nan diagnosis, fto unsocial afterwards," said Kelf, who has nary aesculapian engagement aliases knowledge of Dion's lawsuit personally.

"Obviously, she has nan resources to get nan best treatment available, but moreover still, it’s rather remarkable."

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In 2019, nan erstwhile technologist started emotion his legs tighten up and stiffen anytime he was tense aliases tense, but dismissed nan overseas sensations until 1 day, he stood and couldn't move.

Kelf tin now hardly locomotion and has been forced to discontinue his job.

Dion has announced 10 shows successful September and October astatine nan 40,000-capacity Paris la Défense Arena, planned astatine three- to four-day intervals. 

The intervals will beryllium important for Dion to gait herself, remainder and medicate betwixt shows, according to Kelf.

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"Everyone’s different, but I’m still surprised," said Kelf, who added that nan illness could "limit" nan singer.

"It’s challenging to unrecorded with, to opportunity nan least. You person to rearrange your full life. There are bully and bad days."

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While Kelf is hopeful that Dion will beryllium capable to make nan show work, he warned against underestimating nan seriousness of the disorder.

Stiff personification syndrome causes stiffness of nan limbs and muscles. Kelf tin now hardly locomotion and has been forced to discontinue his job. (Jon Kelf / SWNS)

"I deliberation it could undermine really earnestly group return us, different sufferers," he told SWNS.

While he views nan circuit arsenic affirmative and inspiring, Kelf said he hopes it will lead to much support for others who are suffering.

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"Otherwise, group whitethorn look astatine her and think, ‘Why aren’t I doing more?’ which could yet person a antagonistic impact."

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"If I’m retired successful public, group don’t spot nan worst of it," he added. "It's nan aforesaid pinch her, they only spot nan bully side."

Fox News Digital reached retired to Dion's representatives for comment.